July 20th – From Sleepy Fun Days to Long Tiring Ones

1999:  Mum’s taking all sorts for her hay fever (unfortunately not the liquorice kind otherwise I’d definitely share) and appears even more confused than usual (if that’s at all possible).  Went to the toddlers club party with Edon this morning and then she dropped me off at Nanny’s.  Nanny packed a picnic and we set off to Danbury lakes.  When we arrived I was sound asleep and Nanny couldn’t wake me and so she had to drive me all the way home again and lift me to the settee.  I eventually woke up four hours later!   Pa was at home this afternoon (he’d left work early to come and see me – I expect it was very interesting watching me snoring) and when mummy arrived she found us playing in the garden with my van.  She kissed me hello on the back of the head and I responded by wiping the area with my hand and saying “no kiss me”.  We played in the garden, ate dinner had a bath and went home to bed.

2019:  Poor mum. All those wiped off kisses. Long long day today.  Zof and I left home at 6 am and got back at midnight following my first experience of driving in and out of London and filming. Cant say too much at the moment but more news to follow in future weeks/months. I had hope for a fertility test today but, due to pending medication changes for Crohns, this was not done as changes with different treatments.

#toddlers #childhood #crohns #fertility #London #Danburylakes #mums #grandparents


July 19th – Antibiotics and Gut Health

19th –  Mummy didn’t go to work today as we had to go to the doctors – I now have anti-biotics for my chest and throat and mummy has some tablets for Hayfever – we’re doing well between us.  We went to Asda for essential supplies – sweets.  Oh, okay we did get milk and bread etc whilst we were there.  We spent some time in the garden and I painted my car again (not as bad as Uncle Teddy at my age who actually painted the neighbours car with bright pink emulsion…..and the front door………and the lamp post………).  We sat on the picnic blanket eating Doritos and Salsa dip, followed by apples and cheese.  I had a midday nap on the settee – for 3 hours!  When I woke up the sun had gone and the wind and dark clouds had come out.  It still felt warm but we weren’t sure if that was our temperature or the weathers – so we stayed in just to be on the safe side.  More crisps and apple this afternoon with milk and lots of duice.  Needless to say I didn’t eat my tea.  I have been dry all day, inclusive of my sleep. 

 2019:  Last day of work before the weekend. Was gonna call round and see mum on the way home but, an accident on the A146 and a huge diversion, put paid to that. One week and we’ll be on our way to Wales. I’m a bit leaner than I want to be for the charity run so have been bulking up with carbs this week, but a fasting day next Tuesday and colonoscopy next Wednesday may flush it all out again (along with any healthy microbiomes I may have left considering all my childhood antibiotics – hoping I don’t have to ever go on the long term antibiotics for Crohns)

#toddlers #crohns #IBD #colonoscopy #wales #snowdon #coughsandcolds #paint #humour #pottytraining #antibiotics #guthealth #microbiomes

July 18th – Life’s Not Always a Picnic!

1999:  Happy but croaky this morning – and so is mum (well the latter anyway!).  Calpol and milk all round then!  Aunty Eesa came round with Dandell and Dessica and we all piled in her camper van and headed for the Farm and a teddy bears picnic. We saw the animals, fed the hens crisps (they didn’t seem to keen but we had fun throwing them – the crisps that is).  We went on the roundabout, bouncy castle, pony rides, playground, went to the craft tent and had ice-cream and ice lollies and lots of fun.  When we got home we played in the garden.  Mummy got the paints out and we painted pictures ……and feet……and arms……and legs………and faces!  Later, Eesa and Dandell were in the paddling pool, I was washing my car with the hose when suddenly mummy had grabbed at the hose and aunty Eesa was throwing buckets of water at mummy.  There was a massive water fight and mummy lost badly – especially as I was still holding the hose!  

2019:  Life’s no picnic today; just one of those days with lots unhappy work phone calls – and then I get one from mum saying she has a letter for me – chasing up one of my parking fines! Marks paid it for now …. until pay day .. role on next week!

#toddlers #childhood #adulthood #money #driving #parking #pcinic #MarshFarm #Southwoodhamferrers #friends #mums #work

July 17th – No Room at the Inn and no Chance to Swim

1999:  Mum packed the swimming bag this morning and when she came down she found me painting my toe nails (and toes) with her nail varnish.  I thought it looked nice, very colourful, but mum didn’t think it suited for some reason.  We headed for the pool – only to find it closed until next week.  I took it well though and we went to visit Aunty Eesa instead.  I played in the garden for a while with the girls and then we went home.  I’ve got a bad throat and am feeling a bit poorly so mummy gave me some Calpol and I lay on the settee watching Pat.  I didn’t sleep and spent the rest of the day whining – that’s mums professional diagnosis anyway.  My point of view is that Dandell and Dessica came round and I didn’t want them to play with my toys.  We went to the park, but things didn’t really improve there either as they kept playing on the equipment which all belongs to me, why doesn’t everyone else realise this?  I fell asleep on the settee at 5.30 – much to mine and mum’s relief.

2019:  So 21/2 weeks until my Snowdon run and mum discovers that the inn she’d booked through Air B&B can not accommodate us. Fortunately she booked another one at Bala. She was very pleased with herself, until I pointed out she’d booked for 1 adult and 5 children (and theres only 5 adults going!) Oh well. I’m sure she’ll sort it!

#Bala #Wales #Snowdon #toddlers #childhood #adulthood #swimming #mums #parents #swimming

16th July -Crohn’s and Colitis UK

1999:  Mummy had to go to Cambridge today so Aunty Karen collected me from Edons tonight.  I pooed in my nappy this morning, weed on the settee and had 3 accidents at Edons so not a successful day by all accounts.  My account says different, but I was out voted.  When Mummy arrived  I was playing in the back garden with Agal in the paddling pool and I wasn’t too impressed to see mum, even wiping her kiss off my cheek!  I thought she was going to drag me away from my fun, but she didn’t – we stayed for a while and then left via Donals drive through where mum bought me chips to munch on the way home.  Mum and I went up to my bed at eight and mummy fell asleep too.  After a few hours she got up and went to her own bed but I felt cold and lonely and followed 2 hours later at one a.m

2019: Had to bring Zof home from work today as she is not well (I told her not to eat the chicken that had been out on the side last night!) When we got home my Colonoscopy date was in the mail box – 3 days before my Snowdon run for Crohns and Colitis UK. Debated changing run date but am going to stick with it. Might be a bit of a farty run. I pity the people down wind!

Heres the link for anyone wishing to donate, read more or support me: http://www.justgiving.com/Mountaintimetrial or follow me on insta @chronically_livingcd

#toddlers #pottytraining #friends #mums #Macdonalds #playtime #work #illness #crohns #colonoscopy #wales #snowdon #fundraising #crohnsandcolitisuk #abbyhardingmemorialfund

July 15th -White Van Man

1999:  This morning mum found all marks over the TV. screen.  I told her I’d been painting, but she’s yet to find out what with, but hasn’t ruled out the candle!  Went to Edons and we went to my planned pre-school to collect starting times and then of to Nanny’s with Bomper.  Pa came home early and presented me with my very own, child size, wooden white van which he had made. It’s official – I’m an Essex white van man!  I thought it was Pats van and asked where the cat was, I looked but I couldn’t find him anywhere!  Then I decided it was an ice cream van and sold 99’s to everyone

2019: Now that would be a good job – driving a van all day, not to go work on site, but surrounded by ice cream. Think I’d probably eat all the profits though! Meanwhile I’ll continue with the day office job which, although restrictive, is much better on my body than the building work was. Although some days just getting out of bed is a mission.  I have had some interesting, non work, phone calls over the last few days which could lead to something interesting, so watch this space for further announcements

#toddlers #growingup #mums #parents #grandparents #Essex #whitevanman #Postmanpat #crohns #IBD #Icecream #toys #carpentry

July 14th – Get out of the Dog House Day

1999: Up bright and early at six.  I helped myself to two bags of crisps which mum happily opened from the depths of her bed and in a drowsy state.  It’s great being up at this time because mum really doesn’t know what she’s doing – I swear she’ll not remember when she wakes up (I hope not anyway).  Mum got up at 7.30 to a neat and tidy lounge and a potty full to the brim.  I jumped in her bath, then dressed and off to Edons.  Mum was really impressed when she picked me up as I haven’t had a nappy on today and I was still in the same clothes I left home in this morning.  I had quite a hyper day and when we got home I went straight to the settee and watched Pat.  I asked for my milk which I drank while mum cooked tea but I never did find out what was for tea as mum apparently lifted me to bed at 5.45!

2019:  Apparently today is ‘Get out of the Dog House Day’. I know this as Argos have this blazoned everywhere and a single blow up mattresses on special offer. Asda on the other hand have free ice bucket with packs of Desperados and Sol Beer which are just £4. Some great bargains. But fortunately Zof and I can do our own thing whilst still being together or simply sit in our flat alone, eating snacks and minding our own business – both of which are sic. I’m just in from work, Zofs cooking tea and Mums booked the B&B for Snowdon,  so all is good. Well, so long as the Lion in Gwytherin confirms the booking

Adenum: England won the cricket World Cup for the first time ever! 241 runs each. 15 runs each super over. What were the odds?

#toddlers #childhood #adulthood #snacks #munchies #pottytraining #argos #asda #beer #icebuckets #wales #Gswytherin #cricket #England #world cup