1999: We went to make toast this morning, but the first lot of bread was mouldy, so I fed it to the birds. Then mum burnt the next lot of toast. Eventually we had toast, bacon and ketchup. Mum went up to have a bath, I went up to join her and she had all this green stuff on her face. She did look funny! Something to do with making her look beautiful – I don’t know if I should tell her that she just looks very odd. We went to the farm this morning; I sat on the play tractor for 15 minutes before we could go anywhere else. We went to feed the sheep and I laughed because their tongues tickled my hands. I got a bit frightened later though, when the big sheep bleated, and mum had to carry me, which was just in time for me to get a birds eye view of a cow doing the biggest poo ever. I don’t envy her mummy having to clean that mess up. My mummy doesn’t know how lucky she is! We went to see the pigs and mum felt guilty about our bacon and toast this morning. I don’t know why because they stink! We spent time in the ball pit and soft play area and when we came out mum tried to get me to put my coat on. Eventually she told me that I had to put it on as it had my sticker on for the farm. Is she really that daft? Look all you have to do is peel it off and stick it on my jumper! What’s so funny about that then? Tooth count up tonight – 10 top and bottom
2019: Well trust me Crohn’s makes you poo just like that bloomin cow! I’m sure I love my bacon so much de to those smelly squealing pigs. I used to try and hold my nose and cover my ears when we went through the pigs bit of the farm. Pretty tricky with only two hands so I learnt to hold my breath. And as or face backs – Zof and I love a good charcoal one!
1999: Mum’s feeling a bit worse for wear this morning, so she lay on the settee and I let rip in the lounge. She let me have my last Easter egg for breakfast – well it is Saturday, and mine lasted longer than hers did! I got dressed and went to play in the garden and oops! – made a mess of my pants. I ended up in the bath, which I didn’t consider very fair as I’d only just got dressed, and needed an afternoon nap. We had a joint dinner and lunch at 3.00 and then walked to town to buy some milk and ‘duice’. I also got a packet of wine gums (named after me apparently) and we sat on the wall watching the boys on their skateboards. I walked nearly all the way back but had to have a piggy back some of the way (which I thought was great fun but mum didn’t seem so keen). I played in the garden and I got extremely muddy as mum was washing all my garden toys and I was helping. Our nicely mown grass is now a mudslide. Yippee! Watched Lion King again tonight – the things I have to do to keep mum amused
2019: Mum came round for dinner tonight but I forgot that the sausages weren’t gluten free so I cooked the chops she had to pop to the shops to buy. Made the mistake of telling her my Crohn’s is really playing up (like she didn’t know anyway) and so ensued the “make sure you go to your appointment”/ “I will if I’m not working”/”Well you wont be working if your back in hospital” conversation! My bad ………. Still. I ended it b putting Ant-Man on. Still having to entertain her.
#crohns #IBD #hospital #antman #Lionking #movies #cooking #dinner #easter #chocolate #
1999: Well spring is here, and mum can no longer say “go back to sleep it’s the middle of the night”. No more fooling me mother. The sun is shining and it’s as bright as day out there. “UP”. We listened to music, watched T.V. and played. We jumped over cushions and then hid under them (my favorite game). I walked all the way to town and back (accompanied by mum). Then I had to sit and wait, and wait, and wait whilst mum had her hair cut. I wasn’t too happy. As we left the hairdressers mum apologised and said something about childcare arrangements next time. Sorry, but I’m the one who was bored and neglected. Aunty Eesa, Dandell and Dessica came over this afternoon and we went to the farm to see and feed the animals. When I was on my pony ride someone stole my animal food and I was not best impressed. I decided to take a short cut to the play area across the grass but half way there, I just stopped dead and didn’t move. Mum came running over to me and discovered I stepped into the bog and was up to my knees in water. Aunty Eesa found this highly amusing and said I looked like a bog monster. Oh ho, ho, very funny. We had ice cream and played on the slide and climbing frame. And then I decided to walk into the swings. Ouch! After tea and baths we all piled into Eesa’s camper van and headed for hers where we stayed the night.
2019: Text mum to see if could come over for tea tonight instead of tomorrow and she agreed. Bought steak for tea from the butchers under us and cooked Mum an early Mothers Day dinner. At work today I walked into a scaffold pole with the ankle and after dinner Zof took me to A&E (mum says she had done her stint of this) but we were back in an hour due to estimated waiting times 7 – 8 hours in all.
#butchers #meat #farms #swings #spring #hospitals #cooking #shopping #mothersday
1999: Mum decided she wasn’t going in to work today as she is poorly. By 8.30 we had my new paints out. I painted with my brushes, my hands and a potato. I think we should call the doctor I think she’s delirious. Don’t we eat potatoes? Anyway, I got in a wonderful mess – everywhere! It was great fun. I played in the garden this morning and this afternoon, with a nap and The Lion King in between. It has turned quite cold again so I had to wrap up warm. It didn’t help when I kept wetting myself though, and mum gave up this afternoon and put nappies on. Mum was cooking mushroom chicken and rice for tea when she noticed the apples she’d bought especially for me a couple of weeks ago which are now apparently on their way out. She must have good eyesight because I can’t see them moving. Ah well, mum knows best (are you sure this is true for all mums?) Mum peeled them and stewed them, and I had them with ice cream. The ice cream was lovely! Didn’t have much of a bath tonight, as for the second night running I decided to play the pull the plug out whilst Mum’s not looking and paddle in the bubbles trick. Far more fun. But there’s no more hot water so I have to go to bed with red hair (of the painted variety).
2019: I used to love mum being poorly. Not because I wanted her to be ill but just because we had more time together doing crazy stuff. And then we both had to grow up (sort of!)
1999: Was full of fun this morning- groomed spot the dog, wore mums slippers and basically just did silly things. When we went out to the car we saw there was a man in a yellow box going up in the air. Mum said he was mending the lights. I WANT A GO. Life’s just so unfair. On the way to Edons I saw a man on his motorbike, I waved and he waved back! I’m so well known around town. Edon took me to the park but it was so muddy we all started sinking and I actually fell down a hole and ended up sinking to my hips! Edon took us to the Village hall park instead whereupon, I decided to fall off the steps to the slide, but I was okay. When mum collected me, I had no trousers on and none to put on, as they were all muddy. I wanted to go to Nanny’s but she was out. We went to Uncle Teddy’s instead, where we bumped in to Nan! We stayed for a drink and then headed to Nan’s for tea. I didn’t want any though. When I went to get into the car, I realised Nan had disappeared. I wasn’t having that. I strode back to the front door. ‘Nan’. ‘Nan’. ‘Nan’. She re-appeared with a current bun. Yum.
2019: Worked up an appetite today. Went over to mums to collect table and chairs, tv and ex box (must have been tired to go without them yesterday!) Mum and Mark came back with us and we cooked a very late brunch for us in our own home. Love this grown up stuff – might change my mind once the bills role in though!
1999: – Mum it’s Saturday – a busy day none the less! We went to Chelmsford to get my 3rd ‘watch me grow’ photo taken,. Mum put my leather waistcoat on for this occasion and I proudly told everyone I was ‘mart’. I pulled my usual stern face during the sitting with the odd smile here and there. I actually thought it far more fun to very slowly dribble out the corner of my mouth, putting more force on it just as the man took the photo! Mum didn’t seem too impressed though. We walked through the high street to the swimming pool only to find it does not open until midday. Doesn’t anybody realise today is Saturday? People want to swim. We walked back to the car and on the way mum bought me a packet of milk buttons to munch on in the buggy and we popped into Zanzibar to buy some tapers and incense sticks. We then made a quick exit when mum noticed a lady walking around with a chocolate button wrapper stuck to her trousers! We eventually left town and got stuck at the traffic lights. Hold up mum, the lights are green, the right hand lanes moving but we’re at a standstill in the left. Mum. MUM. Those cars are parked! How embarrassing. Everyone behind was very patient. Well she has died her hair blonde……….
2019: My mums blonde moments are endless. There really wasn’t any hope for me. Having said that I’m definitely the more sensible one and actually have some common sense. But then again mum did remember to leave me a list of jobs to do today! Shopping and cooking were the highlights.
#blond #hair #ditzy #growing up #photography
1999: When I got up I was full of beans and I got mum to join in my antics too (even though we were running late). I found the headphones for mum’s walkman and sang into the connector piece (as usual) and today I did it on my very own stage – mum’s flat packed wardrobes which are on the floor waiting to be put up. I wish she’d hurry up and do it, my room’s still full of all her clothes (and I thought I had a lot!) Told mummy that I’d had a good day at Edons but I refused to put my shoes and socks on tonight so mum had to carry me to the new, shiny red car. I love it! Mum’s bought a smelly for it, but I didn’t care for that much, it smelt far better than it tasted. When we got home I found ice-lollies in the freezer which mum made me eat in the kitchen (I can’t think why). The phone went tonight before, during and after tea – Dev, Eesa, Nan, Karen and Tracey! Mum and I cuddled on the settee but she put me to bed at 7.45 as she thought I was tired and miserable. I thought I’d been trying to communicate! I was asleep within 10 minutes – perhaps she was right, but I won’t tell she knows best.
2019: Communication’s not my best thing currently. Low mood and arguments. Got an email to advise I did not get short listed for mental health support worker role I applied for – but at least they bothered to email me. My grumpiness when tired and hungry has continued into adult life but not working definitely makes everything 10 times worse. Self esteem is taking nose dive as is my Crohn’s
#depression #self-esteem #crohns #autoimmune #work #humour #growing up