March 29th

1999:  I waved to all the cars, buses and lorries on the way, to Edons today and not one of them waved back, I didn’t think that was a very good start to the day.  It was quiet today, as it’s half term, so no Jake or Josh, but Lea and Dan were there.  I didn’t want mum to go this morning and this evening I came running out to meet her.  There was an Easter egg in the back of the car, which I spied straight away, and ended up eating it all but still ate my tea (which I feel was a good move on my part) Played in the garden, watched some of Simbas Pride with mum after my bath, and was in bed and asleep by 8.00.  Not a very eventful day, but the chocolate was good!

2019:  I clearly used to love chocolate. Still like my sweets but chocolate is one of my worst “go through me” intakes. But then most foods do and I’m either eating for England or not at all. Got caught short in Tesco the other day and had to run (luckily pre ankle injury!). I followed the toilet signs only to come across a large rail of clothing blocking my path. I had to run all the way round another two aisles and came to the disabled loo first with a big sign “Not all disabilities are visible”. Phew! I went in, pulled everything down and sat on the throne just in time to do a big “Crohn’s let rip”. Relief. Bugger. There was no bloody toilet roll. So ensued 10 minutes of trying to get Zofs attention by text (who is usually glued to her phone) and eventually she responded, found me loo roll and deposited it to me in the disabled loo. No need to text to get her attention today as we are glued together, at Stansted and on our way to Budapest. Lets Party!

#holidays #budapest #stansted #flying #crohns #IBD #IBS #tescos #shopping #eating #sweets #chocolte #eastereggs #toddlers #growingup #childminders

February 4th – Cooking and decorating

1999:  Mummy’s going back to work today, after having been off sick, so it was on with the old routine.  I did help her to have a shower though and even fetched a towel for her, such the little gentleman.  Mum collected me from Edons after work and I helped her to cook the tea.  We were having burgers, so I took them out the packet and started licking them but spoil sport mum took them off of me.  My tummy’s fine thank you very much.  We ate the cooked burgers with Thomas the Tank pasta shapes – with a slight variation – singed flavour.  After dinner I dished up the ice cream, but as usual ate most of it out of the carton – I find it tastes better that way.  Tonight mummy emptied her chest of drawers ready for painting, she was so engrossed she didn’t realise I’d managed to get the lid off the gloss paint and had loaded a brush until it was a tad too late.  I think my carpet design is quite nice actually

2019:  Mum has actually gone back to work today after 5 weeks off following redundancy. She came home and started dinner but I took over the pasta back as I prefer in unsinged! Clearly I was just copying mum with the painting as she gets it all over the carpet when she paints.

January 12th

 

1999:  We arrived for breakfast to discover the high chair ready and waiting.  I ate bacon, a sausage (which looked remarkably like poo, I picked it up and said so very, very loudly, at which point Mummy crawled under the table, I don’t know why, she can be so embarrassing at times) and a slice of toast and marmalade.   Trudged around in the freezing cold sleet for 30 minutes to find a GP surgery as I keep falling over and am now back on antibiotics for ear infection.  We went swimming and I did really well holding mummy’s hand up and down the swan slide and so eventually she let me have a go on my own.   I fell backwards; mummy caught my leg just in time.  She had a banged leg and I have a banged back. In the dining room tonight I wanted the “ man” (waiter) to pour my juice into my cup.  He obliged saying “hold it tight” as I held on to my cup.  All was going well until half way through when I dropped the whole lot over my trousers.  We had to go back to the room to change and I had hysterics thinking I was going to bed, but we went out again – dancing. I have won the hearts of all, nearly everyone here knows my name and I had several dances with several ladies tonight.  I wave to them all when I leave one room and say hello when I go in to another.  

2019: Well after a hectic week Zof took me out to dinner last night at Bella – our first date restaurant – love Italian and my table manners have improved, although I remain fairly clumsy so drink spillages are not that uncommon. I don’t swim much now but did train as a life guard when I was 17 and spent a year at Camber Sands and a year at Scratby lifeguarding until going on to other things. One of those things being club host and entertainer – still love to dance and be the centre of attention some nights, although other days and nights will see me hiding away from the world with anxiety and depression and I struggle to even place an order at MacDonalds. Things are much better since I met Zof though and we are now thinking of getting our own place. Crohns not great at the moment but I continue of the immune’s and mum is certain a lot of this is due to all the antibiotics I had as a child knocking out my healthy gut bacteria so keeps trying to feed me them too (lucky she’s away at the moment!)